To find a local Parkinson's caregiver support group near you, a regular meeting for care partners, search by state. Then contact a nearby chapter for care-partner groups and local referrals. A care partner is a spouse, family member, or friend who helps someone with Parkinson's.
Local groups differ in size, schedule, and focus. Some serve only caregivers, while others meet with people with Parkinson's. Check format before you go to save time and stress.
Medical information disclaimer: This article is for general educational purposes only and does not provide medical advice, diagnosis, or treatment. Always consult a physician or other qualified health professional about symptoms, medications, tests, or treatment decisions.
Table of Contents
- Search Parkinson's Groups by State
- Ask Your Clinic and Community
- Get Help by Phone or ZIP Code
- What If No Local Group Fits?
Search Parkinson's Groups by State
The Parkinson's Foundation says its Chapter network connects people with Parkinson's and caregivers to local support groups, wellness classes, and education programs. Search by state through Find Your Chapter. The American Parkinson Disease Association says its chapters and Information and Referral Centers offer local general, care-partner, young-onset, and DBS groups.
DBS means deep brain stimulation. Call or email the nearest center for help finding nearby resources. Use these steps to narrow your search. Start broad, then confirm details by phone or email.
- Enter state, then filter for caregiver or care-partner groups.
- Note meeting day, time, address, and contact name.
- Ask if caregivers meet separately from people with Parkinson's.
Ask Your Clinic and Community
The Michael J. Fox Foundation advises asking your neurologist's office, local hospital outreach staff, and community calendars for groups. It also points to national Parkinson's organization websites for listings, such as practical advice on support groups.
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The same foundation notes formats range from large formal meetings to small living-room gatherings. A large meeting suits listeners who want many contacts. A small group suits speakers who want time to share.
Get Help by Phone or ZIP Code
The Parkinson's Foundation says its Helpline at 1-800-4PD-INFO (473-4636) or [email protected] provides referrals to nearby and virtual support groups, exercise classes, and specialists. Hours are Monday through Friday, 9 a.m. to 7 p.m.
ET, as described in Helpline answers. The federal Eldercare Locator is a public service of the Administration for Community Living for older adults and caregivers. According to the agency, users can search by ZIP code for local aging services, including caregiver support resources. Find options through local aging help or call 1-800-677-1116.
What If No Local Group Fits?
The Michael J. Fox Foundation says its Parkinson's Buddy Network is a free online community for people with Parkinson's, loved ones, and care partners. It offers connection, shared experience, and resources when no suitable local group exists.
The Department of Veterans Affairs lists virtual drop-in caregiver groups through its Parkinson's Disease Research, Education and Clinical Centers. Some groups require enrollment in the VA Caregiver Support Program. Veteran families should call ahead to confirm enrollment rules and meeting times.
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